Strategies for Charitable Giving this Holiday SeasonThree ways to support your favorite charities this holiday season that fit into a smart tax-planning strategy. The holidays are a popular time of year to give to charity. We are in a good mood, feeling generous and may also be looking for ways to lower our taxable income… Read More »STRATEGIES FOR CHARITABLE GIVING THIS HOLIDAY SEASON

On Monday, September 16th, twelve courageous people living with Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis took the stage in Bethesda, MD at the Externally-Led Patient-Focused Drug Development Meeting on Myeloproliferative Neoplasms. They discussed how health events and living with chronic cancer continues to disrupt their lives, their symptom burden, and what strategies they use for… Read More »BRINGING THE VOICE OF MPN TO THE FDA

October 10th is Mental Health Awareness Day. What does that have to do with myeloproliferative neoplasms? More than you think. In multiple surveys, people living with an MPN (Polycythemia Vera, Essential Thrombocythemia or Myelofibrosis) have reported a higher rate of anxiety or depression than the general population. A recent study from Denmark coroborated this. Looking at 2,209… Read More »MENTAL HEALTH AND MYELOPROLIFERATIVE NEOPLASMS

Learning that a loved one, friend or colleague has recently been diagnosed with an MPN may leave you at a loss for what to do or say. You may feel confused. Should you act as though nothing is wrong? Maybe you should tell them about your great aunt who had an MPN. Follow this advice… Read More »HOW TO SUPPORT SOMEONE DIAGNOSED WITH AN MPN

The American Society of Hematology is always a mad dash, a chaotic rush of activity, all focused on blood. MPNRF goes each year to hear the latest and greatest from researchers and companies focused on PV, ET, and MF, both basic science and results of clinical trials. We also use this opportunity to connect with… Read More »ASH 2019 HIGHLIGHTS

December 30, 2019 We’re wrapping up another year on earth, and as such, everyone is reflecting on the notable events of the past year or even decade. There are so many highs and lows in the lifespan of a patient advocacy group. The triumph of funding your first grant, of raising your first $100 or… Read More »END OF YEAR 2019

March 27, 2020 Over a week ago, the U.S. was rocked by the realization that the novel Covid-19 virus was spreading throughout the country. Based in Illinois, the staff at MPNRF have been sheltering in place since approximately March 16th, learning to adapt to this new reality, balancing home and work life from sharing Wifi… Read More »THERE FOR YOU, NOW AND AFTER COVID-19

The nation has been roiled by a movement that recognizes how long overdue we are in dealing with inequality on the basis of race. Rather than stay silent because our mission is focused on supporting people living with a myeloproliferative neoplasm, we realized that this IS our lane. We know that there are systemic biases… Read More »BLACK LIVES MATTER

American Society of Hematology Conference Features Exciting MPN Updates Including MPNRF Funded Research Normally the annual meeting of the American Society of Hematology (commonly referred to simply as “ASH”) takes place in a conference center in a major city. True to 2020 style, this year’s conference was all virtual but, fortunately, no less productive! Of… Read More »ASH CONFERENCE FEATURES EXCITING MPN UPDATES INCLUDING MPNRF FUNDED RESEARCH

March 8th is recognized as International Women’s Day, a day to recognize the contribution of women to society, globally. The MPN Research Foundation has long championed the work of women in MPN research. Currently we are supporting several projects helmed by women who are doing groundbreaking work in the study of PV, ET and MF:… Read More »INTERNATIONAL WOMEN’S DAY: THANK YOU TO OUR MPN RESEARCHERS!