Before there was knowledge of the JAK2 mutation, there was the MPN Research Foundation.
Both the Foundation and MPN patients had the nerve to demand that medical science deal with us now.
We were audacious enough to be impatient, to push for better and more treatment options now.
On a personal level, being diagnosed with an MPN may have been one of the biggest shocks of your life. Globally, the fight against cancer is one of the most significant challenges in history, and we must not rest until we have the answers we deserve, answers that lurk in our bodies and in as-yet untried interventions.
Sixty years after the MPNs were first identified we have finally begun to make progress. One approved medication. There are more treatments in clinical trials now than ever before, all representing a promise of new and better options. These are good things, but it is not enough, and it is not time to sit back and wait.
Now is the time to act. So we are asking you today: what’s next? If you could focus MPN research on one problem or area of interest, what would it be? Take a moment to tell us now. We’re listening.