• … and why exactly does it matter to MPN patients?

    The MPN Research Foundation began working with AAMDSI last year on the Rounds, an event in which clinicians hear directly from each other about how they treat patients who present with various scenarios. Given that MDS (myelodysplastic syndrome) is somewhat similar to MPN, this program is an opportunity for both organizations to reach out to physicians who see both MPN and MDS patients simultaneously.

    Our partnership with AAMDSI produced our first Rounds in September 2011. During this program we are joined by physicians across the Chicagoland area to hear two presentations of a clinical case: one on MDS and one on MPN. On April 25th the the MPN portion was presented by Drs. Damiano Rondelli and Santosh Sarof from the University of Illinois at Chicago who discussed allogenic stem cell transplants.

    Attendees are given continuing medical education (or CME) credit for their participation. Physicians must earn a certain amount of CME each year in order to continue practicing. We also distributed information on local ongoing clinical trials focused on MPNs as well as MPN patient brochures. Our hope is that physicians will share the information they learned with each other and their patients. 

    This kind of program helps us towards our goal of keeping MPN doctors apprised of the latest in treatment and research news so that they in turn can give the highest quality care possible to their patients. If anyone has questions about this program feel free to contact us at 312-683-7249 or jgordon@mpnresearchfoundation.org