I have PV with negative Jak2, first diagnosed July 2008, after my Brain tumor (Meningioma) operation March 2008. I had 2 blood clots in my legs and hematoma while in the hospital. Prior to brain tumor operation I had TIA’s, some dizziness, diminishing eye sight in my right eye and numbness feeling on my right side. I take 1000 mg hydroxyurea and 20 mg simvastatin every evening and take 10mg lisinopril and low dose 81mg aspirin in the morning. I have no side affects and feel great. I do alot of walking every day and some hiking and camping during the summer. My concern is taking hydroxyurea, which it is anti-cancer chemotherapy drug.
Seems like no one knows what the long term affect it will have. I would like to hear any discussions on hydroxyurea long term affects.