PATIENT RESOURCES
We have compiled some of the best online resources for information about polycythemia vera, essential thrombocythemia and primary myelofibrosis. Finding a hematologist, accessing primary medical research reports or gaining more information on MPNs is available through the links below:
The American Society of Hematology: Find a Hematologist
Aplastic Anemia & MDS International Foundation
The Bone Marrow Foundation
CancerCare Inc.
Cancer Research & Treatment Fund
Cancer Support Community
The Leukemia & Lymphoma Society
The Mastocytosis Society
MPD Chat
MPD Voice
MPN-RC (MPN Research Consortium)
MPD Stichting – a Netherlands MPN organization
MPN Canada
MPN Education Foundation (formerly CMPD)
MPN Forum
MPN Mate (Australia)
MPN Quarterly Journal
National Marrow Donor Program
NORD (National Organization for Rare Diseases)
Patient Power
PV Reporter
If you know of an organization that should be on this list but is not please send an email to communications@mpnrf.org.