PATIENT RESOURCES

We have compiled some of the best online resources for information about polycythemia vera, essential thrombocythemia and primary myelofibrosis. Finding a hematologist, accessing primary medical research reports or gaining more information on MPNs is available through the links below:
  • The American Society of Hematology: Find a Hematologist
  • Aplastic Anemia & MDS International Foundation
  • The Bone Marrow Foundation
  • CancerCare Inc.
  • Cancer Research & Treatment Fund
  • Cancer Support Community
  • The Leukemia & Lymphoma Society
  • The Mastocytosis Society
  • MPD Chat
  • MPD Voice
  • MPN-RC (MPN Research Consortium)
  • MPD Stichting – a Netherlands MPN organization
  • MPN Canada
  • MPN Education Foundation (formerly CMPD)
  • MPN Forum
  • MPN Mate (Australia)
  • MPN Quarterly Journal
  • National Marrow Donor Program
  • NORD (National Organization for Rare Diseases)
  • Patient Power
  • PV Reporter
    • If you know of an organization that should be on this list but is not please send an email to communications@mpnrf.org.
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