Participation in the registry is currently limited to those inside the U.S. and over the age of 18 but further expansion is on the horizon. myMPN is not yet mobile-friendly so please use a laptop or desktop to access your myMPN account. 

Watch the webinar below to learn more about how patients can contribute to the cancer community and scientific research by sharing their voice.

FAQs
What are the benefits of joining myMPN?

• myMPN functions as a repository for each participant’s experience with an MPN. Each completed survey is accessible by the user going forward. Participants can download their symptom, event and other data to share with their doctor or for other purposes.
• The registry provides participants with the opportunity to inform the research and drug development community with data they need to move better MPN treatments (and, potentially, cures) through the discovery pipeline more quickly.
• The platform offers the research community the ability to follow-up on specific topics of interest. For example, a researcher may request additional info on the experience of a group of patients who have used a certain therapy. A targeted survey can be pushed to those users for research purposes.
• Participants will learn about clinical trials that may be of interest to them.

Will I be able to see what drug trials are available for me?

If a user opts to receive information, he/she may be alerted when clinical trials are recruiting that may be suitable.

How many emails will I receive?

Because the data collection is meant to be ongoing, we will send emails periodically to encourage continued engagement with the registry. Users will also receive emails informing them of special surveys, trials, etc.

Will the information I share be kept private?

Data is stored by PEER (Patients Engaging Everyone Responsibly) on a secure server. You decide how your data is used.