MYMPN: A TOOL FOR PEOPLE WITH PV, ET AND MF
On December 31, 2020, the myMPN Patient Registry will be taking a pause from collecting patient-reported data to reflect on our progress and evaluate how to grow the program further. We appreciate your understanding, and we look forward to seeing you back soon! Please direct any questions, comments, or concerns to firstname.lastname@example.org
myMPN uses patient data to influence research + treatment — and ultimately, find a cure for MPNs.
About myMPN Patient Registry
myMPN empowers patients to change their prognosis by sharing their experience of living with an MPN. The development of targeted disease therapies will be expedited when firsthand information about disease symptoms and progression are available from patients.
What is myMPN?
- It’s a digital hub for patients to record and anonymously share their unique MPN journey with the research community
- Participants can access a secure online portal with a personalized dashboard. As they complete surveys listed on the dashboard, the registry will provide insights into how the user’s MPN experience compares to other registry users
- All patient data is protected and only shared according to individual user privacy settings
- myMPN is a place for eligible patients to connect with upcoming drug trials and research that will help increase our knowledge about PV, ET, and MF