October 10th is Mental Health Awareness Day. What does that have to do with myeloproliferative neoplasms? More than you think. In multiple surveys, people living… Read More »MENTAL HEALTH AND MYELOPROLIFERATIVE NEOPLASMS
December 30, 2019 We’re wrapping up another year on earth, and as such, everyone is reflecting on the notable events of the past year or… Read More »END OF YEAR 2019
The nation has been roiled by a movement that recognizes how long overdue we are in dealing with inequality on the basis of race. Rather… Read More »BLACK LIVES MATTER
Does a Myeloproliferative Neoplasm (MPN) diagnosis mean you have cancer? Because doctors use the word ‘neoplasm’ (new growth) for both cancerous (malignant neoplasms) and non-cancerous… Read More »ARE MYELOPROLIFERATIVE NEOPLASMS (MPNS) CANCER?
Written by Robyn Scherber, MD Familial predisposition to MPN is something that we have suspected to be occurring for many years. A recent study reported in… Read More »ARE PV, ET AND MF PASSED DOWN IN FAMILIES?
Over 50 MPN patient advocate groups from around the globe congregated in Prague, Czech Republic, this August. The purpose was to share best practices, learn… Read More »WHAT HAPPENS IN PRAGUE REALLY SHOULDN’T STAY IN PRAGUE
This past September we attended the first-ever meeting for people with Pediatric MPN and their friends and family. Held in Chicago, this meeting was organized… Read More »HISTORY WAS MADE IN CHICAGO LAST MONTH
We had a busy year pursuing many avenues, new and old, in search of more effective treatments and a cure for MPN patients. In 2017… Read More »GOODBYE 2017. HELLO 2018.
Finding Help Across the Horizon: What Global Collaboration Can Accomplish By Bill Crowley, Director of Development When the 2011 earthquake and tsunami hit Japan, causing… Read More »FINDING HELP ACROSS THE HORIZON: WHAT GLOBAL COLLABORATION CAN ACCOMPLISH
Today is Rare Disease Day. Every year on the last day of February we join the world-wide chorus of voices speaking up to raise awareness… Read More »TODAY IS RARE DISEASE DAY
