HOW TO SUPPORT SOMEONE DIAGNOSED WITH AN MPN
Learning that a loved one, friend or colleague has recently been diagnosed with an MPN may leave you at a loss for what to do… Read More »HOW TO SUPPORT SOMEONE DIAGNOSED WITH AN MPN
PATIENT SUPPORT
PATIENT SUPPORT
THERE FOR YOU, NOW AND AFTER COVID-19
March 27, 2020 Over a week ago, the U.S. was rocked by the realization that the novel Covid-19 virus was spreading throughout the country. Based… Read More »THERE FOR YOU, NOW AND AFTER COVID-19
HOW TO IDENTIFY MYELOPROLIFERATIVE NEOPLASMS
Identifying Myeloproliferative Neoplasms (MPNs) can be a challenge. Many symptoms are general and correspond with a variety of other conditions that are not necessarily specific… Read More »HOW TO IDENTIFY MYELOPROLIFERATIVE NEOPLASMS
HEALTH CARE LAW CONTINUES TO EVOLVE
As the American health care law continues to evolve, the MPNRF is staying on top of how it is changing, and how people living with… Read More »HEALTH CARE LAW CONTINUES TO EVOLVE
HOW WE CAN HELP MOVE MPN RESEARCH FORWARD TOGETHER
I was hired by the MPN Research Foundation in May 2016 to spearhead the development and launch of the first ever patient driven registry. At… Read More »HOW WE CAN HELP MOVE MPN RESEARCH FORWARD TOGETHER
FEBRUARY 29TH IS RARE DISEASE DAY: 4 REASONS YOU SHOULD CARE
Even though MPN patients who have a rare disease many may have never heard of “Rare Disease Day” and know next to nothing about the… Read More »FEBRUARY 29TH IS RARE DISEASE DAY: 4 REASONS YOU SHOULD CARE
MEET THE 2016 MPN HEROES
On Friday, December 2, recipients were announced at the MPN Heroes Celebration Event, hosted by CURE magazine, during the 58th American Society of Hematology’s annual meeting in… Read More »MEET THE 2016 MPN HEROES
SILVANA-ET
I am Silvana, and I live in Rotterdam, The Netherlands. I’m 52 years old and was diagnosed with E.T December 19th, 2011, about 3 weeks… Read More »SILVANA-ET
UPDATE ON MEDICARE COVERAGE DECISION FOR STEM CELL TRANSPLANT IN MYELOFIBROSIS
The Centers for Medicare & Medicaid Services’ Coverage and Analysis Group released a proposed decision memo Thursday on modifications to the National Coverage Determination for… Read More »UPDATE ON MEDICARE COVERAGE DECISION FOR STEM CELL TRANSPLANT IN MYELOFIBROSIS
TAKE ACTION NOW-MEDICARE IS ABOUT TO SET STANDARDS FOR MYELOFIBROSIS RELATED STEM CELL TRANSPLANTS
On October 29, the Centers for Medicare and Medicaid Services (CMS) issued a proposed rule allowing Medicare coverage for stem cell transplants in approved clinical… Read More »TAKE ACTION NOW-MEDICARE IS ABOUT TO SET STANDARDS FOR MYELOFIBROSIS RELATED STEM CELL TRANSPLANTS