Strategies for Charitable Giving this Holiday SeasonThree ways to support your favorite charities this holiday season that fit into a smart tax-planning strategy. The holidays… Read More »STRATEGIES FOR CHARITABLE GIVING THIS HOLIDAY SEASON
American Society of Hematology Conference Features Exciting MPN Updates Including MPNRF Funded Research Normally the annual meeting of the American Society of Hematology (commonly referred… Read More »ASH CONFERENCE FEATURES EXCITING MPN UPDATES INCLUDING MPNRF FUNDED RESEARCH
You may have heard that MPNRF, along with fellow MPN advocates, is holding an externally-led Patient Focused Drug Development meeting with the FDA this September. If you are… Read More »LET THE FDA KNOW ABOUT YOUR EXPERIENCE LIVING WITH PV, ET OR MF!
Parterships are Important. They bring people together in pursuit of a common cause and put many minds to work on a problem, increasing the likelihood… Read More »THE IMPORTANCE OF PARTNERSHIPS IN THE MPN COMMUNITY
Even though MPN patients who have a rare disease many may have never heard of “Rare Disease Day” and know next to nothing about the… Read More »FEBRUARY 29TH IS RARE DISEASE DAY: 4 REASONS YOU SHOULD CARE
One question that always comes up when Bob and I talk is this: “Why don’t we have new drugs for the MPNs?” It is a… Read More »NOVEL THERAPIES: CLOSE BUT NOT CLOSE ENOUGH
Does the smiling face of Layla Richards mark a new era in genetic medicine that could change all our lives? The story of Layla Richards… Read More »IS THIS THE BEGINNING OF GENE-EDITING MEDICINE?