Identifying Myeloproliferative Neoplasms (MPNs) can be a challenge. Many symptoms are general and correspond with a variety of other conditions that are not necessarily specific… Read More »HOW TO IDENTIFY MYELOPROLIFERATIVE NEOPLASMS
An Inspiration in the MPN Community “I thought I had fleas” the itching was that bad. I threw out mattresses; and after many appointments with… Read More »AN INSPIRATION IN THE MPN COMMUNITY
Even though MPN patients who have a rare disease many may have never heard of “Rare Disease Day” and know next to nothing about the… Read More »FEBRUARY 29TH IS RARE DISEASE DAY: 4 REASONS YOU SHOULD CARE
I am Silvana, and I live in Rotterdam, The Netherlands. I’m 52 years old and was diagnosed with E.T December 19th, 2011, about 3 weeks… Read More »SILVANA-ET
The Centers for Medicare & Medicaid Services’ Coverage and Analysis Group released a proposed decision memo Thursday on modifications to the National Coverage Determination for… Read More »UPDATE ON MEDICARE COVERAGE DECISION FOR STEM CELL TRANSPLANT IN MYELOFIBROSIS
For the past several months we’ve kept you informed and taking action on Medicare’s pending decision of whether to provide coverage for people with myelofibrosis… Read More »MPN COMMUNITY JOINED BY LEGISLATORS IN SPEAKING UP ON MEDICARE’S PLAN FOR MYELOFIBROSIS
Over the last few months, one of our stars has been quietly completing a truly remarkable achievement. Rochelle Moore is about to complete her 4th century… Read More »A SPECIAL LOVE STORY
Tomorrow is the first day of September and this means it’s the first day of Blood Cancer Awareness Month (BCAM).All through September, share your stories… Read More »BLOOD CANCER AWARENESS MONTH ON SOCIAL MEDIA
Our support means you are never alone. In the fight against MPN Blood Cancer, Research & Support can make all the difference. The MPN Research Foundation is your partner.… Read More »BLOOD CANCER AWARENESS MONTH-PATIENT EVENTS
A guide for being there when it matters most What can I do to help?” is probably the most common thing we say to a… Read More »HOW TO HELP A SICK FRIEND
