American Society of Hematology Conference Features Exciting MPN Updates Including MPNRF Funded Research Normally the annual meeting of the American Society of Hematology (commonly referred… Read More »ASH CONFERENCE FEATURES EXCITING MPN UPDATES INCLUDING MPNRF FUNDED RESEARCH
You may have heard that MPNRF, along with fellow MPN advocates, is holding an externally-led Patient Focused Drug Development meeting with the FDA this September. If you are… Read More »LET THE FDA KNOW ABOUT YOUR EXPERIENCE LIVING WITH PV, ET OR MF!
I was hired by the MPN Research Foundation in May 2016 to spearhead the development and launch of the first ever patient driven registry. At… Read More »HOW WE CAN HELP MOVE MPN RESEARCH FORWARD TOGETHER
There has been, from time to time, a question about whether myeloproliferative neoplasms are cancers. Let’s be clear, they are. But don’t take our word for it.… Read More »IT’S WORLD CANCER DAY
Even though MPN patients who have a rare disease many may have never heard of “Rare Disease Day” and know next to nothing about the… Read More »FEBRUARY 29TH IS RARE DISEASE DAY: 4 REASONS YOU SHOULD CARE
I am Silvana, and I live in Rotterdam, The Netherlands. I’m 52 years old and was diagnosed with E.T December 19th, 2011, about 3 weeks… Read More »SILVANA-ET
There were many interesting sections from today’s meeting. Bill Crowley from the MPN Research Foundation was on the ground at the event and shared some… Read More »NOTES FROM CR&T MPN SYMPOSIUM
Giving Tuesday: When America Gives as Good as it Gets. Giving Tuesday was founded in 2012 by New York’s 92nd Street Y, in partnership with… Read More »GIVING TUESDAY WITH MPNRF
Do you want to double your dollars? A $25,000 Matching Gift Fund has been setup by a group of generous donors. That means that a… Read More »DOUBLE YOUR MPN DONATION
On October 29, the Centers for Medicare and Medicaid Services (CMS) issued a proposed rule allowing Medicare coverage for stem cell transplants in approved clinical… Read More »TAKE ACTION NOW-MEDICARE IS ABOUT TO SET STANDARDS FOR MYELOFIBROSIS RELATED STEM CELL TRANSPLANTS
